Sunday, August 31, 2008

On again

Our pal, Dr. Spitenup, continues to confound. Hope's poop tested negative for old blood Friday. We thought that would trigger more monitoring. Instead, Spitenup threw a curve and wants to go ahead with the endoscopy sceduled for this Tuesday.

We're not thrilled. Hope has been in such a giddy mood lately we'd think she was on goofballs if we didn't know better. We're anxious about messing with that mojo, but eager to try to learn more about the source of her intermittent bloody up-chucking.

Like most with CdLS, Hope still struggles with feeding, reflux and digestion. We've stuffed her like foie de gras. She's taken to solid foods -- particularly oatmeal and peas -- like Mikey to Life Cereal. Even so, her slow weight gain has slowed even further. She's put on only about a pound over the summer. Our goal of having her hit 10 pounds by 12 months seems unattainable.

If the endoscopy can provide some answers, we'd be thrilled. Our fear is the opposite: We'll subject her to tremendous discomfort and learn nothing. The alternative, of course, is inertia and that does no one's Breck girl any good.

Speaking of which, we're not being modest about Hope's supposed debut in the CdLS Foundation's monthly newsletter. We've heard rumors for a week that her photo graces the pages, but we're stumped.

We play it cool around the mail lady, but peep out the windows in anticipation whenever she's in the neighborhood. Super-duper telekinetic powers to the contrary, our copy has yet to arrive. But prepare for some serious chest-thumping, "Yeah, that's our girlie" when it does.


Sandi said...

Love the photo! Someone was enjoying their meal :-)

Sorry to hear the test didn't reveal anything. Hopefully the endoscopy will give you some answers.

I haven't received my copy of "Reaching Out" yet, but I'm looking forward to seeing your Cover Girl gracing the pages!

Jan said...

Well, I found out the hard way that you don't google "reaching out" and find a photo of our lovely Hope! What I got instead was a web site for gay, lesbian and transgenders!! Please give me the link when her likeness graces the pages of the right website/publication!

Rachelle Riedmiller said...

We received our copy of Reaching Out the other day. I recognized Hope right away -- you have every right to be excited and proud. it is an adorable photo!

Karen said...

Good luck with the endoscopy.
I am glad to hear that I'm not the only one who didn't receive her issue of "Reaching Out" yet...I can't wait to see Hope's photo!

Misty said...

i got my reaching out today and saw her inside!! Very adorable!

i know the frusteration you feel. we are going through very similar things right now. i'm sure you will read about it soon! :)

thinking of her!!